The portal is aimed at rare disease advocates, patient groups and charities, though anyone with an interest in rare diseases or advocacy is welcome to sign-up. It is completely free to use, and users are encouraged to contact Findacure with suggestions for new content.
The portal shares ‘how to’ and best practice on a range of topics – from building your team to running patient registries – to encourage efficient and sustainable growth of patient groups. It can be accessed from anywhere at anytime, though is currently only available in English.